I also never took any narcotic pain killers after surgery. We were told it is papillary cancer but the aggressive kind, so he will need a pet scan every 6 months. My mind doesn't wander as much as it did a week ago, and I have a really great appreciation for everyone that cared for me, checked in on me, and helped me in any way through this. NEVER do this! and his team (same group who did the right one). She reported left upper lid drooping and showed a recent picture with only the right side of her face flushed in a hot summer day (Figure 1, upper panel). It is found in the front lower part of your neck. An MRI of my neck (ordered by orthopedic due to neck pain) showed not only several herniated bulging discs- but a mass on my right thyroid gland. Thyroidectomy is the surgical removal of all or part of your thyroid gland. This site needs JavaScript to work properly. My personal torturer is U. and he is defiantly good at his job of making me hurt for an hour + so I feel better later. The aim of this study was to analyse the long-term musculoskeletal disorders in TC patients who had undergone thyroidectomy. Below are general instructions for patients who have had thyroid or parathyroid surgery. Do not scrub the wound or put pressure on it with high pressure water or your fingers. July 14th Thursday Bangor Dental appointment with x rays my teeth look healthy just needs some cleanings, they also checked to make sure the radiation therapy I had didnt cause any tooth damage, so far so good. Results. It's typically worse the day after surgery and quickly begins to get better. They placed an IV line and took some blood samples. September 13th I had my follow-up at Madigan for my ear surgery, I still have dizziness so they scheduled me for a follow-up hearing test as well as a CT scan and some Vestibular (Balance) training. My throat feels full and I still feel "gaggy" from time to time. Nerve pain or neuropathic pain comes with skin sensitivity, tingling, numbness, and stabbing pain. Your thyroid is a butterfly-shaped gland located in the front of your neck. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. My only regret at that point is that I didn't ask for ativan or xanax or something to calm my nerves it could have been given IV. My dr was booked until late February and I was freaking out so I went to the ER. It has become shrill and high-pitched. So, here is a more detailed experience of what just the thyroidectomy was like. I apologize in advance for the extreme detail in this that may bore some of you, but since I had no idea what I was facing, different people's detailed accounts really helped me prepare for minor things I may not have thought of. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. Is the lack of hormone 6 days post op the reason for feeling like HELL??? I've read some of the older posts concerning this issue but the posts are discontinued. Our plan had been for him to get a hotel room to use as a day room while I was in surgery and to use it if they released me way late in the evening. In the morning they brought me what I asked for for breakfast (Cherios, yogurt, and apple juice). I have been on Levothyroxine 125 to 150 for 2.5 weeks and am starting to feel better from Hypothyroid symptoms. How long it takes to recover will depend on your situation and the type of surgery you had. The Nutritionist who gives this seminar said she would check through my medical record to make sure my levels were normal and if she couldnt find all the blood tests she would order them so I could get my nutrition balanced. Mind you, they were all very polite, but they were all very firm that they don't do robotic assisted surgery via the arm pit if it is either cancer or if the nodule is greater than 1cm; so I was two for two in not getting robotic assisted surgery as mine was both cancer and greater than 1cm. My surgeon kept telling me it's normal after the surgery, but won't give me detail explanation. To analyze the effect of neck stretching exercises, following a total thyroidectomy, on reducing neck pain and disability. He got out the floor roll to start working on my leg muscle as well man that hurts. Stretching exercises to reduce symptoms of postoperative neck discomfort after thyroid surgery: prospective randomized study. In the weeks after your thyroid surgery, you may have neck pain, soreness of your vocal chords or a weak . Federal government websites often end in .gov or .mil. Numbness or tingling of fingers, toes, or around the mouth. I did. Hello, Not sure what my TSH read at those doses, but I see my oncologist in a few weeks and am requesting a copy of my medical records should be able to figure out what my levels were with each by comparing them to the dates of prescriptions. Korean Society of Laryngology, Phoniatrics and Logopedics Guideline Task Force, et al. Once your thyroid is removed you are now . Sihawong R, Janwantanakul P, Sitthipornvorakul E, Pensri P. J Manipulative Physiol Ther. That was where the majority of my swelling was, this corresponds to about where the top of the thyroid was. I keep reading about people getting like 8 lymphnodes removed at once and 5 ending up as cancerous. They'd said I might not remember being wheeled into surgery, but I remember the trip into the OR and looking around the OR. The .gov means its official. I quickly ordered mac and cheese and mashed potatoes. As days pass, I feel that this might not be a good decision. Complementary and alternative therapies for back pain II. FOIA In any event, we went to the store when I got home and stocked up on ice cream, yogurt and pudding. A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. That was not my experience. I still do have some hearing loss in my right ear but it is not something to worry about now, although they say in the future I may need a hearing aid. As an example, one surgeon said he wouldn't do the surgery without intraoperative nerve monitoring of the recurrent larynegal nerve and the other said he thinks it's a waste of time to use the nerve monitor. He said he would test the tissue during surgery for cancer. My body scan was interesting. The visit included an ultra sound and 6 needles biopsy of the mass. The surgery went well and the next day I was released from the hospital to recover. Source: Images courtesy of Stephanie L. Lee, MD, PhD, ECNU. Tender neck : After surgery, it is natural for a patient to minimize . Since then I have had minor vertigo and a small section of my tongue tastes like metal when eating (supposedly this is do to the taste sensor in the ear?). 5) Does the TSH suppression level really effect the possibility of spread? In general, thyroid surgery is well tolerated and the vast majority of patients will have a smooth recovery. Meeting went good although it was just me S. Cheryl and the leader of the group this time normally they have a few others. Another thing I get to consider is that when I get dizzy my knees tense up and start hurting a lot more so now that I am doing the Vestibular training I will be having more knee/leg pains. 2022 Oct-Dec;18(4):641-642. doi: 10.4103/jmas.jmas_174_21. 2005 Jun;29(6):775-9. doi: 10.1007/s00268-005-7722-3. I had a total thyroidectomy last week. Horners syndrome as described in this case report is a very rare complication after thyroidectomy with fewer than 35 cases reported in the literature, and most cases occur after surgery for malignant thyroid glands associated with lymph node dissection or with surgery for large goiters with retrosternal extension. They required me to start out on a liquid diet, which I tore through like crazy (the cherry "ice" was really good). I have friends that "had a friend that went through this and they are just fine". The terror at night is gone, I'm feeling calm and back to myself. A complete neurologic examination confirmed otherwise normal cranial nerves. After getting zero sleep last Sunday night I arrived at the hospital at 6:00 a.m. sharp on November 23. It makes hormones that control every part of your metabolism, from your heart rate to how quickly you burn calories. People with a history of keloids (excess scar tissue) may experience more scarring after thyroid surgery. First, let me say, I don't like iced water. Nothing like feeling normal. Your thyroid gland makes hormones that control your metabolism, body temperature, and heart rate. A total thyroidectomy is surgery to remove all of your thyroid gland. No chemo or typical radiation but I had pretty major surgery, will need to take meds the rest of my life and LID and RAI was/is no picnic. On the 9th of September I had an appointment with my PCM and he confirmed I still had a major ear infection and gave me different antibiotics for it. I have heard some things from Dr's here I question a little bit (As I told some people before no low iodine diet was ever recommended etc although I did a 5 day extreme low one so . ). Facial and Jaw pain. It came back normal non cancerous. Both surgeons recommended almost the exact same treatment plan. God, family, friends and prayer are what got me through these last 7 months with thyroid cancer. Don't stay in a hotel if you can avoid it after RAI (it really is dangerous to others) and if you do, don't post it anywhere or you will be crucified (however if you search, there are really good posts about how to do it as safely as possible). Some people are put on T4 when they leave the hospital. Trust me they are, but I worked it out. I was told I would be having surgery in mid-October and it was not able to be scheduled until November 23. I remember getting onto the operating table and the anesthesiologist telling me that she was starting anesthesia. While I was taking 150 mcg/day, I was feeling quite good but she said my tsh didn't need to be repressed that much, that I was borderline hyperthyroid, and cut me back to 125, and then 115 (at which point I felt rather garbagey, started struggling with depression, muscle pain and some fatigue). That was a Tuesday. Sorry I know this is long. However, the location on the neck minimizes the likelihood of keloids. Four weeks after her surgery, the patient presented to our clinic. So, I might be called to come in early. Just seems like order of operations has been a complete mess. . I'm no singer but I do talk too much, so I was really worried I wouldn't be able to do so for an extended period of time. Also, people with darker skin tones may seem to have more noticeable scars due to the contrasting color of pigmentation in scar tissue and skin color. Mentally I feel like I have cleared this massive hurdle. I had many thyroid nodules but the largest,cancerous one was 3.8 cm. Your health care provider may advise using sunscreen to help keep the scar from being noticeable. We got to know each other, and exchanged some friendly banter on a variety of topics including football and hockey. They both gave me their reasons why. I went to both appointments with a list of written questions. I reminded them I was 50 miles away, and they said to keep my phone with me. Finally, I told the nurse I was overheating and she suggested taking off the leg squeezing devices. I have discovered that this is not a good cancer to have and it has not been easy. A few randomized trials, mostly using inadequately validated instruments, showed significantly reduced neck pain, neck stiffness, movement disability, and need for postoperative analgesics by applying neck and shoulder exercises after thyroidectomy [8, 21-23]. 8) Waiting on TG and TGant tests Monday, but surgeon wants to biopsy the 1.5 cm lymphnode and open me up this week and remove if cancerous. I was told to get naked and to put on a gown called a bair paws gown. So I was told at that time . Will do an RAI in 4 weeks. I'm considered low risk for recurrence. On March 2nd I was told I had several small foci of papillary carcinoma in the tissue of the right thyroid that was removed and that the entire mass was being sent to another hospital for further research but it looks benign the doctors recommended removing the other side, we decided that was the best plan. For this is a forever journey I am on! Questions: call the office on (03) 9347-8786. This was another full day at Madigan because it takes 4+ hours just to get through the line and get through the Pre Admission unit. Growths: Masses, including tumors, cysts and bone spurs, can put pressure on the nerves in your neck, causing pain. Nov 2009 through Oct 2010. It's not completely numb but the inside feels like muscle / skin is falling asleep or 'thick' (not sure if i describe them properly). The initial clinical suspicion pointed to a haematoma, but a needle aspiration showed chyle. 5 May 2011 1 year out from treatment (for radiation) Chyle leak is a rare complication of thyroid surgery. They gave me a pill and I drove to a cabin in the mts. Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. 2010 Oct;(194):1-764. Soon after the diagnosis, I underwent total thyroidectomy with right lateral compartment and central compartment dissection on December 28, 2020. The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration. So hopefully this helps calm down some of you starting to go through this process because its not all bad experiences (and this is coming from someone who has had their cancer spread described as "Chernobyl-like"). The surgery before me was running late and the clock just kept getting later and later. Older posts I saw explain that because the facial nerve were cut and will take few weeks to months to heal. Also, through the night I drank some more water using the chin to my chest trick to get the water down. That was attributed the nodules and the cancer. Then, they hit me with propofol and the lights went out. Unable to load your collection due to an error, Unable to load your delegates due to an error. 2022 Sep;46(9):2212-2222. doi: 10.1007/s00268-022-06610-0. I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). If I can be as much of an emotional and psychological mess as I was and get through it I promise you will be just fine. Linking evidence to action: Within half an hour I was being wheeled to the elevator to head down to the first floor. Stay alone in a separate house if you are able for RAI(it really is hard to keep your distance). I kind of learned quickly to tilt my chin toward my chest as I swallowed to lessen the pain and actually got the four HIV and a couple of other pills down. But I was informed that they would be delay in visits while I was recovering from radiation treatment. Some of it still doesn't make sense to me (in that the sequence of logic fails me), but then again I was on strong pain killers for part of the time and I didn't go to medical school. Furthermore, last night, I was awoken at 3 am by pain in my neck. Lots of people on here talk about how awful having a thyroid replacement medicine is, and that no one ever feels totally ok on it. A later CT scan also showed some suspicious pulmonary nodules in the lungs. The type of pain that you will feel greatly depends on the kind of surgery you've had. Now that I have my Vestibular training times setup I hopefully will be able to schedule Physical therapy for my knees without conflicts. I called the office to verify that was correct and was told it was. My family members tried to reassure me that everything would be ok, but I just couldn't stop thinking thoughts of "what if I don't wake up," "what if I do wake up," "what if they find something incredibly bad inside." Post thyroidectomy neck pain after endoscopic thyroidectomy. I didn't overly strain, but I did have one day where the pain meds must have overwhelmed the stool softener and I pushed a little harder than I think I should have. So many people just blindly trust anyone with an 'MD' in their title, but call people you know who have gone through it, meet with multiple different doctors, make sure your surgeon does hundreds of these a year. For me, this was the only appointment at which anyone even discussed paying up front for services. Health care providers perform thyroidectomy to treat thyroid disorders. By 6:30 or so I was famished. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. undefined will no longer be visible to you including posts, replies, and photos. Minor differences in their approach. Can it grow that fast from elevated TSH levels? He currently thinks they are looking good at the level I am at and wants to wait till December before he adjusts them. Before On the 18th of June I went back to Dr Ch., Endocrinology at Madigan for follow-up on my CT scans and to check the balance on my thyroid meds. For the first 14 days I showered from the armpits down and washed my face and hair in the sink to keep the stitches and steri-strip dry. Questions: On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. Prior to RAI some surgeons recommend T4 and Thyrogen (which is what my surgeon did at our pre-op visit) and some recommend T3 temporarily and going hypo. 1) When can I start running and exercising? The combination with of nortriptyline 10 mg per day and . Straining on the toilet not only can rip the surgical site, it can cause you to stroke out. While doing the setup for the Stapendectomy preparation Dr H. noticed I had a lump in my throat and sent me in for further testing.

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